Thursday, April 30, 2009

Close to Home

Dear Friends,

I come to you today with a heavy burden and an aching heart. Last week, our friends and neighbors (across the street from us), son Grant (age 2) was diagnosed with Duchenne Muscular Dystrophy. It is a fatal disease and right now there is no cure. This disease slowly attacks the muscular system ultimately taking away Grant's ability to walk, his arm function and more. As you can imagine this is devastating news to this family. I am asking that you will come together with me, as a body of Christ, and pray for this family - The Meermann's - Heinrick, Heather, Dresden (6) & Grant (2).


Dear Heavenly Father,

We come to you right now, grateful for today, as we know there is no guarantee for tomorrow. We pray that every day, we are reminded of how precious life is and that our time on this earth is a gift.
We lift up The Meermann family to you and the journey they are facing. We pray that You will provide them with undeniable peace in this storm.
Lord, use us, as a body of Christ, to come together and reveal Your grace to this family. You are the hope they need to battle this fatal disease.
We pray for their hearts and eyes to be opened to the love of our savior Jesus Christ. We lift up their strength and determination to fight for a cure for this disease.
Lastly, Lord, we pray for baby Grant, may you use his story to impact others. Provide him with a zest for life that is magnetic. Use him to make a difference in the world.

In His Holy Name,
Amen


If you have said this prayer, please leave a comment for this family encouraging them. And then forward this on to your friends and family asking for their prayers. Let's come together to make a difference in this family's life. Thank you for your prayers.
Tanni

P.S.
From the heart of a mother - this e-mail was sent from Heather, last week - My Dear Friends, I have some very sad news to share. As many of you know little Grant was delayed in his speech and has been in speech therapy. We still struggle to understand him, but he has made progress. Last Thursday, one of the ladies evaluating him noticed how defined his calf muscles were. We had always thought he just had nice calf muscles. But the lady seemed overly concerned and asked us to check with our doctor. I...of course...immediately went home and began web searching (calf muscle + language delay) and found that a horrible disease...Duchenne Muscular Dystrophy kept coming up. It is a rare disease and thought it was a long shot...but I just couldn't get it out of my mind... so Heinrich took Grant to the doctor last Friday to have a CK test run. Just to rule it out. The doctor did not seemed overly concerned, but decided to refer us to a pediatric specialist. Even the specialist didn't seem overly concerned and thought his calves were not out of line with his body type. (He has always been a little stocky) He agreed to run the test anyway...just to ease our fears. We got the results late yesterday. Normal levels for kids and adults are around 50-190 U/L. Grant's levels were over 24,000 U/L. I know all indications are leaning towards the worst. I am asking all my friends and family to pray (to whatever God you believe in) for a Miracle. He is my baby. I am so sorry to let everyone know about this through email, but I am so emotionally and physically drained I don't have the energy to call. Please just pray for us (and any other families affected by childhood disease). I will be in touch soon. Love to you all,
Heather Meermann

20 comments:

Our Life Together said...

The family and baby Grant will continue to be in our prayers. Tanni- let us know if we can do anything at all.

Amy said...

I will be praying for this family! Thank you Tanni for keeping me updated.

Jo Ann Chastain said...

Tanni-Billy told me about precious little Grant last week. I have added him to the prayer list at LFA, my church. He will be in my constant prayers. God is still in the "miracle" business and we must never forget that as this journey of Grant's goes on. I pray for his family as well. God bless you for being an awesome friend to them.

Bobbi Jo said...

My heart is broken, as I can't even imagine the hurt and fear this family is feeling. I know that our God is bigger than any disease, and I will be praying for Grant and the Meermann family.

Marcie said...

We are praying diligently for them. Our prayer is also that they will feel, and come to know personally, the love of our Saviour. Precious picture of Grant, and beautiful prayer. We are all blessed to have a neighbor like you.

Shipley Family said...

We will certainly keep them in our prayers. We know from experience that our God works miracles. Keep us updated on little Grant and his family.

Staci said...

We will be praying for this family...that hits very close to home for me because my sister in law is a carrier of MD and we've prayed for my nephew for 14 months now.....

I can't believe the boys are 3. We haven't seen you in so long. Would love to catch up with you guys when you are in town!

Staci Cass

Rachel said...

Dear Tanni,
I will keep this family in my prayers. There are limited things that we
can do for friends and family in times of need, but one can always pray.
Our precious and loving Father, above, can heal and create miracles which
is my prayer for this family.

I love your blog. It is very uplifting and right now, that is just what
I need. May God bless this family and you for being such a dedicated follower.In Beth Moore's study of Daniel, she talks about how God will take you through the fire, around the fire or take you home. I pray that God takes this family through the fire and in the end they have healing and a miracle for their precious baby boy!

Rachel
Mommy of Timothy, Bobbie and Jacob

Smile God loves You!!!!

Angie said...

Tanni,
I can't leave a message for your friends from work. But they are in our thoughts and prayers. My heart aches for them. You have such a beautiful family. I noticed that you go to FOTW. That is where we go too. I haven't been unless I have a babysitter though. I have a three yr old and 6 month old b/g twins. I'm afraid that it's still too loud to bring them into the church. But maybe I'll run into you sometime.
-angie

Kimberly said...

hi Tanni, I am praying for baby Grant and his precious family. Davon and I have been particularly touched by Duchenne Muscular Dystrophy, we were summer camp couselors in college to 2 boys both with this type of MD. It breaks my heart that they are going to endure this heartache, and we will most definitely be praying for them. love you!

Lindsay said...

I will be praying for them.

Lacey said...

Grant and his family are in my prayers. Clinging my cross and praying hard.

Grady & Kim said...

Tanni,

We will keep them in our prayers. Please let us know if there is anything else we can do.

Grady and Kim

Astrid said...

We love Grant!

Bobbie said...

Saying a prayer for Baby Grant and for the whole family.

Cassie Fuller said...

Our family will keep Grant in our prayers, and extend the requests to Abundant Life Church, family, and friends. My sister-in-law was diagnosed with bone cancer when she was 8yrs old and was healed through prayer in Jesus' name. Our God IS a healing God. May baby Grant be a miracle we all can share!

Suzi Pasini said...

I will be praying for the family and a miracle for this sweet baby boy Grant. God Bless the family and give them the strength they will need.

Tiffany said...

"Your prayer was so touching Tanni, I will keep them in my prayers...God has this girl!"

kammy said...

Praying for Grant and his family as well as for you guys to be used by God in this circumstance. We don't understand why these things happen, but we do know that God is in control...

Kathy said...

We will definitely keep them in our thoughts and prayers!